Information

Ehlers Danlos Syndrome
Legacy Name: Ehlers Danlos

The Common Hikei
Owner: Crab

Age: 9 years, 9 months

Born: July 19th, 2014

Adopted: 9 years, 9 months ago

Adopted: July 19th, 2014

Statistics

• Level: 1
   
• Strength: 10
   
• Defense: 10
   
• Speed: 10
   
• Health: 14
   
• HP: 14/14
   
• Intelligence: 0
   
• Books Read: 0
• Food Eaten: 0
• Job: Unemployed

Ehlers–Danlos syndrome (EDS) is an inherited connective tissue disorder with different presentations that have been classified into several primary types. EDS is caused by a defect in the structure, production, or processing of collagen or proteins that interact with collagen, such as mutations in the COL5A or COL3A genes. The collagen in connective tissue helps tissues resist deformation. Collagen is an important contributor to the physical strength of skin, joints, muscles, ligaments, blood vessels and visceral organs; abnormal collagen renders these structures more elastic. In some cases, the severity of the mutation can be life-threatening.

There is no cure for EDS, and treatment is supportive, including close monitoring of the digestive, excretory and particularly the cardiovascular systems. Occupational and physical therapy, bracing, and corrective surgery may help with the frequent injuries and pain that tend to develop in certain types of EDS, although extra caution and special practices are advised to prevent permanent damage.

People who suffer from EDS are often misdiagnosed with hypochondriasis, depression, chronic fatigue syndrome and other conditions because EDS is considered an invisible disability, and there is generally poor knowledge about EDS among practitioners. Many sufferers of EDS have psychological difficulties as a result of frustration with the medical system and the socially inconvenient combination of appearing normal while being in severe pain. To deal with these issues, interest groups have tried to raise awareness about EDS among medical professionals.

The features of EDS were first described by Hippocrates in 400 BC. The syndrome is named after two physicians, Edvard Ehlers from Denmark, and Henri-Alexandre Danlos from France, who described it at the turn of the 20th century.-source: http://en.wikipedia.org/wiki/Ehlers%E2%80%93Danlos_syndrome

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